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My
mom always had a desk drawer full of greeting cards
ready to send. The cards were for birthdays, anniversaries,
a variety of holidays, get well wishes - and sympathy
cards.
I
followed in my mother's footsteps and have always
had birthday cards on hand. But now, I'm stocking
up on sympathy cards, too, for I'm a baby boomer,
and we boomers have reached the age when our own
parents are dying.
Last
summer, it hit me when my father died. Although
I, like my mother, had sent cards when my friends'
parents died, I did not truly know how overwhelming
the grief would be until my own father passed away.
I was anticipating it to be tough, because I was
always close to my parents. But, after all, my dad
was 85 years old and had lived a great life. I was
prepared, right?
There
is no way to be emotionally prepared for such a
loss. But, besides the raw emotions from the loss,
there are family dynamics with siblings, concern
about the remaining parent, and in many cases, financial
worries.
Saying
Goodbye to My Father
My daughter and I had arrived
in Iowa for a 10-day summer vacation the evening
of July 4. I was jolted awake the next morning before
7 a.m., when I heard my mother shouting at my father
to sit down. My "vacation" drastically changed.
It was clear my father had had a stroke, affecting
his left side.
We
knew immediately that it would take a miracle for
my dad to recover from this massive stroke. Consequently,
one of the family's primary concerns was his quality
of life. Would he be kept alive by artificial means?
What about surgery? What about feeding tubes? What
about respirators?
The
doctor doubted that my dad would ever return home.
He wasn't well enough for a rehabilitation unit,
and Medicare limited the time allowed for his acute
hospital care.
During
his second week of hospitalization, my mom and sister
started shopping for a nursing home. My dad would
not be the "typical" nursing home patient, because
of the extra care he would need, so the options
were limited, and the expenses were high.
Mom
found out Medicare would not pay past 100 days,
and it wouldn't even pay all the bills during those
first 100 days, either. My parents had been successful
farmers and bankers and had always lived comfortably.
But, simple calculation made it obvious that their
nest egg would only last a couple of years if Dad
lingered in a nursing home.
"Most
families do not realize that in this day and age,
with people getting older and living longer, they
face the harshest creditor of all - health care,"
says Bonnie Marshall, an attorney and advocate with
NHS (Nursing Home Services), LLC, a company in Glendale,
CA, that helps families nationwide obtain Medicaid
benefits for long-term nursing home care and asset
protection.
Fortunately,
my father had made his wishes very clear. He had
signed both a living will and a durable power of
attorney. He had discussed the issue at length with
both my mother and all of his children. When the
time came to say our goodbyes and stop any extraordinary
care, we were able to do so, knowing it was his
wish, and he died less than 12 hours later.
That's
not always the way it works. Countless friends have
told me of their loved ones who lived years in nursing
homes, with no semblance of a life.
"My
dad had a stroke like yours, and he lived for seven
years in a nursing home, without ever uttering a
word or even knowing us," my friend Bill recalls.
"But, he didn't have a living will, so we had to
let the hospital do everything, even perform surgery
to put in a tube to feed him. We knew it wasn't
what my dad would want, but there was nothing we
could do."
Preparing
for the Future
Often called "the sandwich generation"
because we are taking care of both our children
and now, our parents, baby boomers also are known
as "children in denial."
"Children
don't want to discuss these topics with their parents,
because they don't want to face the reality that
their parents are going to die," Marshall says.
"We find there is much more hesitation in the children
dealing with this than the elderly parents. It's
the children who often have so much more to lose."
Christina
Norman of Time and Balance Consultants in Santee,
CA, has compiled a guide called Being Prepared:
A Practical Guide for Organizing Final Arrangements.
In it, she writes, "Planning ahead has helped thousands
of survivors cope with the complex emotions surrounding
the death of a loved one, which provides comfort,
assurance and peace of mind. It is important to
make arrangements and organize ahead of time before
illness occurs and while talking about this subject
is easier for everyone."
Marshall
says that because no one knows what to expect, there
are important tools to have in place so the appropriate
decisions can be made at the appropriate time.
"All
of a sudden, healthy parents who have a stroke or
fall, can within days go from being an independent
person to being helpless," she explains. "Many people
think that if they have a will, they're OK. A will
is not a tool to assist them during their lifetime,
just a vehicle to disperse property after their
death."
According
to the Health Insurance Association of America,
seven million Americans 65 and older will need long-term
care this year. By 2020, when the boomers are seniors,
the figure is expected to reach 12 million.
In
the published results of a recent survey it had
conducted, AARP stated that, "The national average
monthly cost of nursing home care is a frightening
$4,654." (Marshall adds that it can be as high as
$40,000 a month, depending upon the level of extra
care needed). More than 55 percent of those individuals
surveyed by AARP mistakenly believed that Medicare
foots the bill for nursing home care.
The
principles of financial planning that are good while
one is working and building toward a future, usually
do not apply when protecting an estate.
"Most
people, while they are healthy, are not going to
give up the reins of control of their property,
or their assets to the kids," Marshall says. "But,
when all of a sudden, some of the things they did
for themselves, they now need help in doing - that's
the time to start taking stock and looking into
the future."
However,
the common tools such as trusts, conservatorships,
and long-term care insurance, may not be the answer.
"Many
seniors and their family members are under the mistaken
impression that expensive long-term health care
insurance policies and living trusts are useful
and will provide needed financial protection," Marshall
says.
"They
don't know that trusts are of no value when it comes
to long-term illness and will most likely force
the family to spend all of their hard-earned money
paying for high health care costs. The irony is
that with the proper plan in place, Medicaid benefits
can be used to meet care costs, and you don't need
to be poverty-stricken to receive them."
Marshall
adds that families should make sure all adults,
regardless of their age, have a durable power of
attorney and medical directives.
"It
may seem hard to talk about now, but it's easier
to follow directives when they can't make decisions
for themselves and you know how they wanted things
to be done," she says. "Otherwise siblings are disagreeing,
you're feeling like an executioner, and it is so
much more difficult at the end."
The
directives are easy to draw up and should be notarized.
It is important that families have conversations
about the information and decisions put into the
documents.
"(When
drawing up these documents) you need to sign over
the powers to someone practical, geographically
close if possible, dependable and trustworthy, because
you are giving away broad powers," Marshall cautions.
It
also is important to be involved with your parents'
health care before something serious happens.
Learning
to Advocate
Marilyn Parker, PhD, learned
about being a health care advocate when her mother
became ill in 1988, and a brain tumor was found
in her father in 1989. Her parents died, respectively,
in 2000 and 1993. Because of all the questions from
friends and referrals from others, she has expanded
her consulting practice from coaching and organizational
and management consulting to include consulting
on how to be an advocate in the health care system.
In
her consulting, Parker addresses such issues as
respecting cultural differences, getting families
and friends involved, integrating a care provider
into the home, dealing with the emotional and logistical
issues of transition from being independent to semi-independent
to totally dependent, and how to interface with
hospital staff, physicians, nurses, administrators,
and therapists.
"When
care is at a pivotal point, you can make the difference
and tip the balance," she says. "If the medical
personnel already know you, and they know you are
likely to show up at any given time to monitor the
care of your loved one, they are going to make sure
they are doing things well and maybe even do extra
touches that they may otherwise not take the time
to do."
As
a culture, we have been taught not to question physicians.
"Most
people do not know how to become an advocate. They
feel helpless when someone is going through the
health care process, not even realizing there is
something they can do," Parker adds. "This is personal,
this is private, and often, family members won't
even talk to each other. Being an advocate does
not mean being an adversary. An advocate is a person
who helps create alliances for families and loved
ones with the medical community and services."
Applying
What We've Learned
As a family, we are putting all
of these points into place with my mom. We are protecting
her assets to ensure she will be taken care of in
the future, we are getting to know her doctors,
and she has already made her funeral arrangements.
In
her guide, Christina Norman's step-by-step organizational
system helps families effectively handle the many
business matters that result from the loss of a
loved one. "It is our hope that the booklet enables
you to prepare for and deal with your family member's
end-of-life transition with clear direction," she
writes.
After
all, we can never be fully prepared emotionally,
and when our emotions are running high is not the
time to try to make any type of decisions.
It
is best that as many of the financial, legal, medical,
and internment issues be discussed and decided -
while the family can still talk about it. It actually
offers peace of mind now while every one is healthy,
as well as when the inevitable event happens.
Ellen
Ficklen, writing in Newsweek magazine, put it this
way: "I know it sounds odd, but one of the most
remarkable, and one of the kindest, gifts my father
gave me was to plan the details of his own funeral
service."
MARY
SCHNACK is a principal with Schnack & Brody Communications,
Inc. (www.schnackandbrody.com),
a full-service public relations agency with offices
in California and Arizona. She can be contacted
at 520-204-9834 (e-mail: mary@prworks.ms).
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